Spreading Sarcoma Awareness with Patient and Surgeon Stories

July is Sarcoma Awareness Month. Few people can tell you that sarcoma is a rare cancer of the soft tissue and bone with over 70 subtypes. And even advocacy groups call it “a forgotten cancer.” But for the tens of thousands of Americans living with sarcoma, sarcoma isn’t rare: it’s a daily reality.

Sarcoma deserves recognition 365 days a year, not just during July.

Knowing that sarcoma requires various treatment options at various stages of discovery, the AAOS and the Musculoskeletal Tumor Society (MSTS) are working hard through the Musculoskeletal Tumor Registry (MsTR) to help clinicians and health systems track function, complications and outcomes in patients treated for sarcomas. The Registry fills a gap in current sarcoma care by focusing on quality-of-life and functional outcomes. As such, it is helping pave the way to find a cure for sarcoma.

We would like to share the patient and surgeon stories about sarcoma below.

If you would like to learn more about the MsTR and the role it plays in allowing surgeons to combine data from institutions around the country, click here.

MsTR Steering Committee Chair Dr. Miller and MsTR Program Manager Atusa Moreno were featured on the Sarcoma Insight Podcast (hosted by Izuchukwu Ibe, MD, and Elyse Brinkmann, MD) to discuss the Registry’s impact on sarcoma research and care. Listen to the episode, “Research and Data in Sarcoma Care - Musculoskeletal Tumor Registry” here.

Your support can help in our mission. To donate to the MsTR, email Atusa Moreno at amoreno@aaos.org.